God's "Will"

I am extremely saddened to say last week we received devastating news concerning our 2 year old grandson, Will. Will was diagnosed with Leigh's Disease. What is Leigh's Disease? To put it in simply terms, it is a genetic disease that affects the mitochondrial DNA in the body and the central nervous system. It's as if you are running on a low battery all day instead of a fully charged battery. You have zero energy. It is very rare and there is no known cure at this time. 

All the pieces of the puzzle are now coming together. Kasey has suspected something was wrong with Will, but couldn't put her finger on it. Numerous trips to the pediatrician discussing Will's growth and tiredness was brushed off as being within normal limits. Now, Will  being diagnosed with Leigh's disease makes sense!Will has tremors in his hands at times, is very small for his age, and lately says, "His legs don't work". These are all symptoms of Leigh's Disease (Syndrome).

We had never heard of this horrible, debilitating disease until last week. Our perfect little world literally turned upside down when we heard the diagnosis. My heart is heavy with utter sadness for my daughter and her husband!

I'm asking for anyone who reads this to please pray for their strength and for a miracle for Will. The power of prayer is awesome! God has sent us this precious little boy for a reason. Dr."Will", he wants to be doctor when he grows up, is a fighter, just like his parents. 

We intend to make Will's life as special and normal as possible. Everyday we have him with us is a blessing. Anyone that meets Will falls in love with him! He has an enormous heart full of love and an incredible positive attitude. He is also very, very bright! He could say the entire alphabet before he even turned 2!:)

We are not sure what the future holds for Will, but we know while he is here in our life, he will be loved exponentially!! God has given us Will and we all feel blessed to have him in our life. This is God's child and we pray that a cure will be found for this precious little angel and all the other angels affected with Leigh's Disease.

We are focusing on the positive and intend to enjoy and relish each and every day with God's"Will". God is good!

Will the day we brought him home from the hospital. God's "Will".

Myself and Will in October 2013.