Sunday, September 21, 2014

Will Power!

Will's t-shirt campaign for Mito. was very successful! The goal was to sell 50 shirts to raise awareness of this rare, hideous disease, and we sold exactly 50. We were hoping to possibly go over the set goal, but we will take every little bit we can get.:)

I've been helping Kasey with the kids this last week. Will has done well most of the time,but these last couple of days have not gone well. He has had this strange jerking of his head towards the end of the day. He also gets super hyper and his eyes start twitching. We know all of these things are due to his disease, but it doesn't make it any easier to watch.This whole situation is extremely difficult!

This is such a difficult time for the family. My heart aches for them all. I pray for God to give me the right words to say in this trying situation. Please continue to pray for our precious Will and for the family. We appreciate all the love and support!!

I praise God that Lauren does not have Leigh's Disease. We are blessed! We needed some good news!:)
Sweet Emmy & adorable Will!:)
Will has now graduated to the toddler bed! He loved his baby bed and when he felt an episode coming on he would asked to be put in his crib. Now what 2 year old does that? God bless him!
Lauren making a funny face at just a few days old!

No comments:

Post a Comment